Well, some of the tests are back and we have some great news:
NO to cystic fibrosis
NO to rotavirus
MAYBE to Celiac Disease
*Only treatment is removing all gluten from Gabe's diet.
I almost cried when I read all the paperwork this morning.
They have already put him on this diet and already it's hard.
He's allergic to all dairy products so limited already to what he can eat.
Now this.....*sigh* No wheat products, the list is HUGE!
So basically his favorite things are all being taken away.
No pretzels, no crackers, no cereals, no rices, no pasta....
Seriously, it could be worse, but this is overwhelming to me when he already
can't have so much.
MAYBE to upper bowel issues
MAYBE to appenditcitis
Plans are to possibly put him to sleep tomorrow and do a scope and check things out.
Thankfully no more throwing up since yesterday morning. BUT......now we have the nastiest
yellow hershey squirts you ever smelled and saw. I keep telling him he belongs in the pig barn
with all the baby piggies. It's awful. AND, we're in ISOLATION...meaning BIG RED FLAG outside his door til we figure this thing out and the stench is overpowering in this room.
More bloodwork was drawn today, so we still await those and the allergy tests taken the other night. Thank you again for all your prayers.
I'm anxiously awaiting the return of Jason so I can breathe some fresh air!!! The only thing my nose sensors pick up anymore is vomit and poo in the strongest and foulest odors you ever, ever in your long legged life smelled.
Overall, he's doing okay. We've gotten him to smile and laugh today despite all the more poking and prodding. Since we're in isolation everyone that comes in contact with him has to wear yellow over coats so hopefully he won't be having nightmares about the yellow people tormenting him. He's getting really irritable....wanting to "go in the car, go outside, go out there" anywhere but this room. They have child life buddies or something like that that come play and bring toys and he liked that. So far, we have loved all our doctors and nurses and feel super blessed in that area.
"6 Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; 7 and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus." Philippians 4
9 comments:
Hi Laura. Ellie is at our house now while your mom is taking Isaac to the dr. We are playing Wii. She just gave me a big grin. Hang in there, sounds like they are being very thorough in their testing. Hopefully you will have some answers soon.
JoEllen
Just wanted you to know we are praying for you all. Hang in there.
Hey Laura, I keep checking your blog for updates. I am praying that they will get to the bottom of this soon - you've been dealing with these unpleasant bodily functions for so long! :) I love reading your posts and am encouraged by your sense of humor and positive attitude during such a difficult time. Hang in there! We all send Gabe and you and Jason big hugs and lots of prayers. Love ya, Jane
I hope he is feeling better soon.
You are definitely in our prayers. Sounds like he is doing well in spite of the circumstances--and you and Jason, too.
We're continuing to pray for little Mr. Gabe!! Thanks for keeping us updated, it's great that we can pray specifically for the scope and for the tests! I can remember Darian spent 5 days in the hospital over his 5th birthday, and those were the LONGEST days... especially when you still have a little one at home. Sheldon would come stay with Darian while I would run home and shower, and come right back after spending some time with Gavin when he was only 3 at the time!! We're praying for you and Jason too!!!! =) WE LOVE YOU GUYS!!!!!! AND MISS YOU MISS YOU MISS YOU
I'm checking this quite often and keeping Marci and others posted so we can keep praying. We all love you so much!!!!!!!
Just wanted to let you know I am thinking about you. What you are going through is not quite the same as what we went through but, when your child is hurting it is the same for any parent. It sounds like you got outstanding doctors. Just make sure if you don't understand some thing ask. They some times forget you are a human and not a doctor. Hang in there and we are thinking and praying for all of you.
Oh Laura! I am praying for you right now! May the Lord grant you much strength and endurance in this!
Love,
Jody Kaeb Sauder
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